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HOPE4Kids - Holistic Oncological Palliative care 4 Europe's Kids
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Objetivos del proyecto
Paediatric palliative care (PPC) encompasses care regardless of diagnosis or stage of disease, and focuses on the prevention and relief of suffering of paediatric patients and their informal caregivers. The value of PPC for children with lifethreatening or life-limiting conditions is well-established in general, and for cancer specifically. Currently, care for children with cancer focuses primarily on disease treatment and symptom management, and specialised PPC is often not received. As a result, many children with cancer and their informal caregivers experience gaps in care, such as poor management of psychosocial and even physical symptoms, failures in communication, inadequate support for informal caregivers, and inconsistent bereavement follow-up.
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